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The untold Side of the movie "Dallas Buyers Club"
The movie Dallas Buyers Club brings attention to a little-recognized part of the AIDS activist movement: ....
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Exhorbitant Price New Hepatitis C Drug
Fair Pricing Coalition Condemns Gilead Sciences on the High Price of New Hepatitis C Drug Sovaldi™...
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Six Promising HIV Drugs in the Pipeline (2013-2014)
What new HIV medications do we have to look forward to over the next few years? How will these newer drugs improve upon the older ones? To shed some light on these questions....
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What Can We Look Forward to in HIV Cure Research
TheBodyPRO.com's Nelson Vergel sat down with leading HIV cure research activist Richard Jefferys for an update on current important aspects, and controversies, in HIV cure research....
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What Supplements Can I take with HIV medications?
Is it ok to supplement with Creatine (Cell-Tech), and Protein (Nitro-Tech) along with Glutamine...
Friday, June 03, 2011
Interview with the first doctor who reported the first cases of AIDS 30 years ago
Dr. Gottlieb, obviously, has been treating HIV since the beginning. He has his own medical practice in Los Angeles. He's one of my heroes. I'm honored to have him here, speaking to us about the first report that he made, and about his thoughts on the present and future of HIV research and access.
CLICK HERE TO READ INTERVIEW
Tuesday, May 24, 2011
Fw: Hot Topics at The Body's "Ask the Experts" Forums
If you have trouble reading this e-mail, you can see the online version at: www.thebody.com/topics.html
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Thursday, May 19, 2011
THE FAIR PRICING COALITION EXPRESSES DISMAY AT THE PRICE OF MERCK’S NEWLY APPROVED HEPATITIS C DRUG
“While this new drug approval is a very exciting development for the HCV community, the Fair Pricing Coalition (FPC) is very disappointed at the price set by Merck for Victrelis,” said FPC member Lynda Dee. “The FPC is concerned that the exorbitant wholesale acquisition cost (WAC) of $1,100 per week will adversely affect the ability of people with HCV to access Victrelis and that it will also set an excessively unreasonable future price point for the many HCV drugs in the pipeline. You can bet that no future HCV drugs will be priced less than Victrelis. This is a very bad start.”
Victrelis is a drug from the protease inhibitor family that is relatively easy and uncomplicated to make. “We understand that drug development costs a lot of money, but there is no reason for a drug from the protease inhibitor class to be so expensive,” said Dee.
Two other drugs, pegylated interferon and ribavirin must be taken with Victrelis, and the WAC price for HCV treatment with these two drugs is approximately $30,000. The FDA label recommends that Victrelis be taken with pegylated interferon and ribavirin for either 24, 32 or 48 weeks, depending on a patient’s response to the regimen. The WAC price for Victrelis is $26,400 for 24 weeks, $35,200 for 32 weeks and $48,400 for 48 weeks of treatment.
“These amounts added to the already high $30,000 cost of pegylated interferon and ribavirin make the cost of the new Victrelis containing regimen astronomical,” said Dee. “Although the addition of Victrelis to pegylated interferon and ribavirin should significantly increase the HCV cure rate, it will be impossible to sustain these prices in light of the current US healthcare crisis.”
“The HCV community is anxiously awaiting interferon-sparing regimens because of the terrible side effects caused by interferon as well as ribavirin,” said FPC member Murray Penner. “An encouraging number of these drugs are currently in development. It will take three and maybe even four of these new drugs in a combination regimen to effectively cure HCV in the future. Future HCV drugs will invariably be more expensive than Victrelis. If each of the new drugs costs approximately $50,000, we are looking at regimens that will ultimately cost between $150,000 and $200,000 in the very near future. This is unsustainable and will unacceptably limit access to the regimens.”
A recent paper presented at the American Society of Liver Diseases conference indicates that there will be a 30% increase in the cost of treating side effects caused by use of the new HCV protease inhibitor drugs. “These increased costs must also be considered in the equation,” said Penner. “Many people with HIV are also co-infected with HCV,” said Bill Arnold of the FPC. “The cost of HIV drugs which must be taken over the entire course of a patient’s life, plus a course of this new HCV treatment is unreasonably excessive. At this time, there are over 8,100 people on waiting lists for federally funded AIDS Drug Assistance Programs (ADAPs). I am very concerned that these people will never gain access to promising new HCV therapies. Many may die as a result.”
Many individuals with HCV also have other medical conditions such as diabetes and bleeding disorders, and people with bleeding disorders pay as much as $150,000 each year for their clotting factor drugs alone. While many do have private insurance, the cost of co-pays and caps on insurance coverage may make these promising new therapies unaffordable for many people with private insurance, resulting in the inability of even people with insurance to access promising new HCV therapies.
“We are very disappointed by the cost set by Merck for Victrelis and are even more concerned that Vertex’s Incivek (telapravir) which will probably be approved by the FDA later this month may be even more expensive,” said Dee. “How will this all end? We fear it will end in a lack of patient access to promising new HCV treatments that will result in morbidity and mortality for hundreds of thousands of Americans.
“Both Merck and Vertex have pledged to make their new drugs available to patients who cannot afford these exorbitant prices through their co-pay and patient assistance programs,” Dee pointed out. “The FPC will continue to advocate for people with HCV to ensure that both companies keep their word. We have kept a tight watch on HIV drug manufacturers in this regard. We intend to do the same thing in the viral hepatitis arena.”
http://fairpricingcoalition.org/
Wednesday, May 18, 2011
Chicago: "Promising Advances in HIV Cure and Healthy Aging Research" on Tuesday, May 31 from 6:30-8 pm
Read the last two paragraphs for details.
| When AIDS service providers talk about condom campaigns and safer sex, most people assume they're not talking to Chicago seniors. But if experts have it right, they need to start.HIV infection rates among Illinois seniors are climbing, advocates say. But unlike other at-risk groups, seniors present unique challenges in battling the disease, not the least of which is a stigma around sex and older adults that often silences that trend in both the media and in doctors' offices. "Folks often times overlook the fact that older adults are still having sex," said Hope Barrett, senior director of public programs at the Center on Halsted. "Sexuality is a lifetime thing. You don't stop being sexual at 30." According to 2009 Illinois Department of Public Health records, more than 10,000 people over age 50 are living with HIV/AIDS in Illinois. That's not just because the generation hit hardest by AIDS is aging; 15% of that figure is new infections, reported between just 2005-2009. That trend increasingly concerns Chicago AIDS service providers and is the subject a new film produced by Center on Halsted, Aging POZitively. The documentary, which premiers May 23 at Center on Halsted, follows three people who contracted HIV after age 50. "It was incredibly challenging to find folks who would come forward to be a part of the film," said Barrett, noting that most seniors shied away from sharing their HIV statuses. The film also explores the rising rate of infections among older adults as well as the challenges facing HIV-positive seniors. Those challenges are myriad, said Dr. Magda Houlberg, a geriatrician who specializes in HIV care at Howard Brown Health Center. Many seniors don't find out they are positive until much later than young people because HIV symptoms can easily be mistaken for signs of aging, like fatigue, depression, and a host of age-related illnesses. Further, other medications can complicate anti-HIV regimens. Those issues also make older adults undesirable to HIV researchers because they can cloud study results. "Most research in terms of drug treatment for HIV is for people under 50," Dr. Houlberg said. "So most information we have is just from what we're seeing [ among patients ] ." Houlberg also believes that HIV rates among older adults might be higher than statistics suggest because few physicians encourage them to get HIV tests. "The medical community is so uncomfortable with sexuality in general, but with older adults they're especially uncomfortable," Houlberg said. "Some older adults do get offended when you broach the subject. It's almost like you're accusing someone of having risk behavior." The U.S Centers for Disease Control and Prevention ( CDC ) recommends that physicians talk about HIV with patients under age 65, but the advent of performance-enhancing drugs like Viagra and the fact that people are living longer has meant that more people are having sex later in life. Some of those people were already married or partnered adults when the AIDS epidemic broke out and may have aged without seeing themselves as susceptible to the disease. Many who are widows or recent divorcees are negotiating safer-sex for the first time, said Hope Barrett. However, people who lived through the onset of AIDS may also be at heightened risk. Modesto Tico Valle, CEO at Center on Halsted, said that some elders who are HIV-positive "assume everyone is HIV-positive," and therefore fail to communicate their statuses to sexual partners. Both causes raise questions for local service providers about how to reach elders. Targeted efforts tend to focus on youth and gay men, making it harder for elders to see themselves in HIV prevention messages. HIV is often passed between generations, however. Valle said that youth and elders who are sexually involved sometimes struggle to negotiate safe sex because partners don't know how to communicate about safe sex in the same ways. Rising infection rates among Illinois seniors follow a national trend. CDC statistics suggest that HIV rates among people over 50 have been on the rise for more than a decade. AIDS diagnoses in that group tripled between 2001-2005, from 1% of seniors infected to 3%. Daniel Montoya, deputy executive director of the National Minority AIDS Council, said that until seniors are screened regularly for HIV, service providers won't have the data to prioritize prevention among that age category. Finally, national AIDS organizations have been hard-hit by recession funding cuts, and many are struggling simply to maintain programs that already exist. A campaign directed at prevention among seniors might be a far-fetched idea. Overwhelmingly, Chicago service providers seem to agree that unless the stigmatization around elders and sex is confronted, the trend will continue. But in Chicago, Juan Calderon, executive director of Humboldt Park-based Vida/SIDA, wants to take that analysis a step further. He is seeking greater commitment from Illinois officials to funding HIV prevention beyond just North Side organizations. He said his organization is ready to fight HIV among seniors, but that Vida/SIDA and other West and South Side groups will need more money. "I think [ seniors and HIV ] is a citywide problem," he said. "We do work with seniors, but we have the challenges of not enough funding. … The Department of Public Health needs to strengthen its approach, and Vida/SIDA will be ready when they do." The documentary, "Aging Pozitively," premieres at Center on Halsted May 23 at 6:30 p.m. The event is free and will include a brief reception. More information is available at www.centeronhalsted.org . Test Positive Aware Network, Positively Aware magazine and Center on Halsted are co-sponsoring a community event on "Promising Advances in HIV Cure and Healthy Aging Research" on Tuesday, May 31 from 6:30-8 pm. The free event, featuring popular lecturer, author and HIV advocate Nelson Vergel, will take place at the Center's Hoover-Leppen Theatre at 3656 N. Halsted. Since learning he was HIV-positive in 1986, Nelson Vergel has become a leading advocate for sports nutrition and HIV wellness. He is author of the book Testosterone: A Man's Guide, and is co-author of Built to Survive. Nelson is the founder of the non-profit organizations Body Positive Wellness Clinic and Program for Wellness Restoration. He's also the nutrition and exercise forum expert for TheBody.com and moderator for PozHealth, one of the largest HIV health discussion listserves in the U.S. The event is free but seating is limited. To RSVP call 773-989-9400 or e-mail tpan@tpan.com . | |
Wednesday, May 11, 2011
Men's health lecture in New York on May 24
Tuesday, May 10, 2011
HIV and nanotechnology: Workshop report i-base.info
A must read!
http://i-base.info/htb/14934
Will You Be a Hero for the Cure?
Fw: TheBodyPRO.com Newsletter: The Latest HIV/AIDS Research and News
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