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The untold Side of the movie "Dallas Buyers Club"
The movie Dallas Buyers Club brings attention to a little-recognized part of the AIDS activist movement: ....
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Exhorbitant Price New Hepatitis C Drug
Fair Pricing Coalition Condemns Gilead Sciences on the High Price of New Hepatitis C Drug Sovaldi™...
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Six Promising HIV Drugs in the Pipeline (2013-2014)
What new HIV medications do we have to look forward to over the next few years? How will these newer drugs improve upon the older ones? To shed some light on these questions....
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What Can We Look Forward to in HIV Cure Research
TheBodyPRO.com's Nelson Vergel sat down with leading HIV cure research activist Richard Jefferys for an update on current important aspects, and controversies, in HIV cure research....
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What Supplements Can I take with HIV medications?
Is it ok to supplement with Creatine (Cell-Tech), and Protein (Nitro-Tech) along with Glutamine...
Monday, April 25, 2011
Diverse Video Testimonials Help Reach Out to Encourage HIV Testing
Thursday, April 21, 2011
Fw: News and Views: Abuse, HIV and Silence; Barriers to Lipo Treatment; PrEP Research Shock; and More
If you have trouble reading this e-mail, you can see the online version at: www.thebody.com/updates.html
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Wednesday, April 20, 2011
How to Fight Insurance Companies that Refuse to Pay for Anal Cancer Procedures
I am looking for any peer-reviewed articles regarding anal cancer screening studies, even with preliminary results, which substantiate the effectiveness of preventive screenings as relates to anal cancer.
My insurance will pay for some "emerging or experimental" treatments in areas such as cancer, etc, which look promising but may not yet have produced concrete recommendations or generally-accepted treatment guidelines. I'd like to find some peer-reviewed articles I can submit with my claim, to get them to call this "preventive", and so fully paid-for. Does anyone have any links to such articles published in any medical journals? Thanks!
Answer from Nelson:
Saturday, April 16, 2011
Facial Lipoatrophy Treatments: Help Us Remove Barriers to Access
Back to Web version of article
The road to regaining a healthy look for people affected by HIV-associated facial lipoatrophy has been a long one. Improvements have come, but challenges are still here. Most people in the United States still do not have access, 7 years after the approval of the first product for this disfiguring problem.
Since the first reports of the drastic disappearance of fat under the skin in HIV-positive people taking D4T (Zerit) or AZT in 1998, the community started experimenting with poly-L-lactic acid (called New-Fill in those days) imported from France. An HIV-positive doctor there had used this nonpermanent substance to illicit collagen formation on his and his patients' faces.
The French manufacturers sold the rights to a large company (Aventis) and this company gathered data for FDA approval of this product for facial lipoatrophy. Most of the data had been generated by three doctors who were using the imported product with the help of their activist patients.
FDA approval came on August of 2004 with a new name: Sculptra. The product was priced at $1,000 per session, plus $400-$600 for doctor's injection fees. Depending on the severity of their facial wasting, patients would need 3 to 7 sessions, with yearly touch ups (this product helps faces gain collagen but it is not a permanent option).
Activists ensured that the expensive product would be provided for free for patients with yearly incomes of under 40K (higher for patients with dependants). Patients still have to pay $300-$600 dollars per session for doctor's fees out of their own pockets. This made access still limited even for those who qualified for free product.
Radiesse, made by Merz Aesthetics, was the second product approved for HIV facial lipoatrophy. It is as expensive and non permanent as Sculptra, and with a more limited patient assistance program that provides discounts (not free product) for those who qualify due to income.
It took 6 years of activism to get Medicare to gather public comments for approval. Medicare approved payments for Sculptra and Radiesse (plus doctor's fees) in January of 2010.
However, the cost of acquiring and administering the product is higher than the payment amount set by Medicare. As a result, physicians are not accepting Medicare payments for this service, and patient access to these effective therapies remains quite limited at the current reimbursement rates. In 2010 the Medicare allowance for an injection fee was set at 80% of $99-$115 (depending on which part of the country the service is administered). The procedure typically takes between 45 to 60 minutes of surgery by a trained physician required to administer Sculptra and/or Radiesse. This is making it unaffordable and impractical for HIV specialists, dermatologists, or plastic surgeons to administer this treatment.
To make matters worse, both Aventis and Merz have already started to limit their patient assistance programs since Medicare's approval, which has left some patients in a bind since they cannot find doctors who would bill Medicare; and the companies tell them that they no longer can help them since Medicare pays for the products and procedure. So, access to these products has gotten worse, not better, after January of 2010.
Now we are asking for your help to sign this petition to be sent to Medicare to have them increase the rates for administering the products to patients.
Please forward it to your physician and friends. The deadline to sign is April 24, 2011.
I will write a blog entry with an update after I hear from Medicare.
Send Nelson an e-mail.
Sunday, April 10, 2011
General practitioners are effective at increasing the level of physical activity among their inactive patients during the initial six-months of an intervention
Two-Year Longitudinal Analysis of a Cluster Randomized Trial of Physical Activity Promotion by General Practitioners
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Saturday, April 09, 2011
Sign-On to Support an Increase in Medicare Reimbursement for Facial Fillers
Activists thought they’d won a major battle when the Center for Medicare and Medicaid Services (CMS) announced in March 2010 that the government health insurance program would begin covering the costs of Sculptra and Radiesse for people who have psychological trauma due to loss of fat in their faces, a condition known as lipoatrophy or facial wasting.
Sculptra and Radiesse are both temporary facial fillers that require touch-ups at least once per year for most people. The retail cost of a vial of Sculptra or Radiesse usually tops $500. As most people need a minimum of four to six treatments, and as doctors charge about $500 to $900 to inject the filler, a full course of treatment can easily exceed $4,000.
It’s the latter point, reimbursement for the physician’s fee, that has Nelson Vergel, a longtime AIDS activist from Houston, and other activists up in arms. Though doctors typically got $500 or more per treatment from their cash-paying patients to inject the facial fillers, Medicare is typically reimbursing only about $80. Obviously, the math doesn’t add up.
“The cost of acquiring and administering the product is higher than the payment amount set by Medicare,” he explains in the letter he’s asking people to sign on to. “As a result, physicians are not accepting Medicare payments for this service, and patient access to these effective therapies remains quite limited at the current reimbursement rates.”
To sign on to a letter demanding that Medicare increase its reimbursement rate for Sculptra and Radiesse treatment, click herebefore April 18.
Wednesday, April 06, 2011
Fw: The Hard Facts on Sexual Dysfunction: Pills, Pumps and Prothetics
From: Mark S. King
To: mark@marksking.com
ReplyTo: Mark S King
Subject: The Hard Facts on Sexual Dysfunction: Pills, Pumps and Prothetics
Sent: Apr 6, 2011 8:44 AM
In my newest blog video, HIV advocate and fitness author Nelson Vergel
("Testosterone: A Man's Guide") explains erectile dysfunction and its
treatments, including issues related to those with HIV.
PLUS: A certain blogger you know is now a New York Times bestselling author;
and I share one of my favorite internet links!
The Hard Facts on Erectile Dysfunction: Pills, Pumps and Prosthetics
http://marksking.com/my-fabulous-disease/the-hard-facts-on-erectile-dysfunction-pills-pumps-and-prosthetics/
You're on the "My Fabulous Disease" e-mail list. To opt out, simply visit the
site and unsubscribe.
Please be well,
Mark S. King
mark@marksking.com
www.MyFabulousDisease.com
p.s. Please join my mail list, become a "My Fabulous Disease" Facebook fan, or
follow me on Twitter @MyFabDisease!
Tuesday, April 05, 2011
Fw: Hot Topics at The Body's "Ask the Experts" Forums
If you have trouble reading this e-mail, you can see the online version at: www.thebody.com/topics.html
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2011
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April
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- Diverse Video Testimonials Help Reach Out to Encou...
- Fw: News and Views: Abuse, HIV and Silence; Barrie...
- How to Fight Insurance Companies that Refuse to Pa...
- Facial Lipoatrophy Treatments: Help Us Remove Barr...
- Pharma Continues to Raise Cost of HIV Meds Despite...
- General practitioners are effective at increasing ...
- Sign-On to Support an Increase in Medicare Reimbur...
- Fw: The Hard Facts on Sexual Dysfunction: Pills, P...
- Nelson Vergel - The Personal Trainer Who Does Your...
- Fw: Hot Topics at The Body's "Ask the Experts" Forums
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